Tag: muscular dystrophy

Nun-sense

The Punching Nun Group Blog

Musings from 75 years of combined marketing (and life) expertise. After all, marketing is life, right?

Scientist Looking for Cures

On Hope and Freedom

I’m writing this from a space the size of an old school dorm room, sitting in a narrow twin bed. It’s day 10 of a clinical trial where I am a helper to my daughter who has a form of Muscular Dystrophy called Friedrich’s Ataxia. There are no treatments, there is no cure and this trial is phase 1, meaning a safety trial—the first one with humans after a successful animal research. Risky? Yes. Scary? Yes. Painful? A bit. Due to COVID what should have been more comfortable just a few months ago is now anything but comfortable. I think

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Scientist Looking for Cures

On Hope and Freedom

I’m writing this from a space the size of an old school dorm room, sitting in a narrow twin bed. It’s day 10 of a clinical trial where I am a helper to my daughter who has a form of Muscular Dystrophy called Friedrich’s Ataxia. There are no treatments, there is no cure and this

Read More »