Tag: muscular dystrophy

Nun-sense

The Punching Nun Group Blog

Musings from 75 years of combined marketing (and life) expertise. After all, marketing is life, right?

On Hope and Freedom

I’m writing this from a space the size of an old school dorm room, sitting in a narrow twin bed. It’s day 10 of a clinical trial where I am a helper to my daughter who has a form of Muscular Dystrophy called Friedrich’s Ataxia. There are no treatments, there is no cure and this trial is phase 1, meaning a safety trial—the first one with humans after a successful animal research. Risky? Yes. Scary? Yes. Painful? A bit. Due to COVID what should have been more comfortable just a few months ago is now anything but comfortable. I think

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On Hope and Freedom

I’m writing this from a space the size of an old school dorm room, sitting in a narrow twin bed. It’s day 10 of a clinical trial where I am a helper to my daughter who has a form of Muscular Dystrophy called Friedrich’s Ataxia. There are no treatments, there is no cure and this

Read More »